Thursday, August 17, 2017

The International IgA Nephropathy Network

During the Second International IgA Nephropathy Symposium in Bari, Italy in 1987, participants from four countries, Guiseppe D'Amico (Italy), Hideto Sakai (Japan), Tony Clarkson (Australia),  and Bruce Julian (USA), met to organize an informal group, the IgA Nephropathy Club. The purpose was to increase awareness of the clinical importance of the disease and to encourage national and international collaboration in clinical and basic science research.

Everyone agreed that the two symposia, the first having been held in Milano, Italy in 1983, had been well organized and served to personalize relationships between investigators who had a common goal to solve the mysteries and puzzles presented by IgA nephropathy.

This kidney disease had become recognized as the most common form of primary glomerulonephritis in the short time span since its initial description by Berger & Hinglais in 1968[1]. However, up to that point, the clinical impact of the disease was underappreciated by nephrologists and other physicians in many countries. The gatherings at the symposia spawned productive collaborative clinical and laboratory undertakings. These efforts increased awareness of the disease in many medical communities and agencies funding medical research.

Over the ensuing years, an international symposium has been held every two to three years. The members of the IgA Nephropathy Club encouraged interested investigators to organize meetings at venues that have rotated between continents, so that young scientists, physicians, and students in many regions of the world could more easily attend. A listing of past and future symposia can be found at the Meetings link on this website. The topics at these meetings have touched on most of the state-of–the-art work in the field. The interactions between the attendees has often been instrumental in stimulating new investigative approaches. The opportunity to review the results and discuss the implications was frequently beneficial in the preparation of more polished manuscripts to be submitted for publication.

In 2000 the IgA Nephropathy Club recognized the need to rejuvenate its format. A more encompassing name was selected, The International IgA Nephropathy Network (IIgANN). The new efforts included changing its approach to a management committee with additional members from more research centers. Also, a website was started to better disseminate scientific information and educational materials to physicians, investigators, students and the general public. In 2012, the website is now updated to www.iigann.com and details about ongoing research and clinical trials were expanded.

IIgANN is a network of friends, colleagues and collaborators, so please, send your scientific contribution and open it to participation and discussion.

Help us make the International IgA Nephropathy network alive and active!

IIgANN Membership

We invite you to join the International IgA Nephropathy Network.

Just let us have your name, institution, and e-mail address.

There is no membership fee.

We will post an up to date list of members on the website. This will help you make contact with others interested in IgA nephropathy,

 The larger the network, the more we can work together to make progress in research and clinical care in IgA nephropathy. A large network is also a very useful way of convincing potential funding partners, including the pharmaceutical industry, that we speak with the authoritative voice of the ‘IgA nephropathy community’.

Once you have joined, we will contact you once a year asking you to update these details so that we have a live network.

Steering Committee  

The current steering committee (August 2012) comprises:

 


[1] Berger J, Hinglais N. Intercapillary deposits of IgA-IgG. J Urol Nephrol (Paris). 1968  ;74: 694-5.

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